Story of my life
My name is Daniele, but you already know that… I was born the 18th of May of 1993 in Naples, Italy.
I am not able to talk or walk and I can’t stay straight on my seat, but who knows me can read my eyes or from the expression on my face what I am trying to say.
I am a very happy boy, everybody loves me, I feel full of love. My parents love me, my brother and my sister love me.. I dare anybody to say that I am not adorable!
I hope you are not thinking that I am arrogant, because what I am telling you is what people think about me.. they tell me everyday.. I know.. and I like it!
Let me tell you what I usually do during my days.
I wake up early in the morning with the smile on my face, my dad takes me to school and then to take physical therapy or water therapy.. I relax when I do physical therapy, because Fiorella (my therapist) does massages on my body, she knows how to make me work without making me angry.. then she makes me listen to the music, because she knows it’s my life! I love music, when I was a little boy I used to sleep in my brother’s room with the music playing on the radio.. still now I love Mtv… I love to watch commercials on tv.. and I like old songs that my dad sings to me all the time, when he changes my diaper or when he tries to wash my face.. which I don’t like at all.. ehehe.. !!
I love the water, but I don’t like to work, Anna (my water therapist) knows that I am a real lazy boy.. ehehe.. everybody says that, because even if I can’t talk you can tell when I’m complaining about something.
I have a lot of friends at school, last year they threw a surprise party for my birthday and I was so excited, I really like to be the centre of attraction. A big thanks to all my teachers!
I give big smiles to everybody and if you see me serious it’s probably because I am paying attention to what you are saying.
The only time I don’t smile it’s because I don’t feel good.. unfortunally my disease makes me suffer a lot and because I can’t speak my family needs to guess what I’m suffering for all the time. Usually it’s because of the wheather.. but sometimes it’s my stomach that bothers me. Thank God everytime my parents understand what is my problem and they can take care of me.. that way I can go back to smile again.
My family is composed by:
- Me
- My father Enzo
- My mother Adriana
- My brother Gianni, his wife Annalisa and their son Martina
- My sister Sara and her husband Angelo
- My two dogs Scotty and Maggie.
I hope you enjoyed reading my story.. even though this is only a part… there’s a lot more to tell, but this page wouldn’t be enough.
Goodbye for now.. keep visiting my website, because we will try to update it currently.
Caro Neluzzo mio ti voglio un mondo di bene! Il tuo
Gianni Fiorenza | Tuesday March 25th, 2008Caro Neluzzo mio ti voglio un mondo di bene!
Il tuo fratellone, Gianni.
Thanks for sharing your site! I wish Daniele &
Laura | Friday July 4th, 2008Thanks for sharing your site! I wish Daniele & his family all the best!
I'm happy to see someone who, despite the problems he
Sam from England | Friday July 11th, 2008I’m happy to see someone who, despite the problems he faces in life, understands the importance of smiling, being happy, and being positive. I’m sure your family must love you, and your courage gives them strength. God bless
Thank you Sam! Daniele is always positive and happy, this
Sara | Friday July 11th, 2008Thank you Sam! Daniele is always positive and happy, this is probably because of all the love we give him, too.. He gives us energy and lots of love! He has been a gift of God for us!
God bless you and your family too.
God bless you sweetheart. You're a role model for all
Michelle | Saturday July 19th, 2008God bless you sweetheart. You’re a role model for all of us.
A great story. It's sad, yet positive and happy as
Gorgonzola Cheez | Friday October 31st, 2008A great story. It’s sad, yet positive and happy as well.
God bless you.
David | Friday January 9th, 2009God bless you.
Dolce Dany,amore della tua mamma e del tuo papà,da quando
Merlino Adriana | Monday January 12th, 2009Dolce Dany,amore della tua mamma e del tuo papà,da quando sei nato..il tuo mondo è il nostro mondo..i tuoi sorrisi i nostri sorrisi..le tue lacrime le nostre lacrime…La nostra vita gira intorno alla tua…tu che parli con la nostra voce,cammini con le nostre gambe,che quando gioisci,noi siamo felici,e riesci con il tuo sorriso ad illuminare una giornata grigia e piovosa..in una piena di sole…Perdonaci,amore mio..dovrai sopportare un altro intervento…i medici dicono:”starà bene!”…vedrai,non soffrirai più come ora,e noi impotenti…noi che vorremmo vedere solo il tuo volto illuminato da quel sorriso contagioso…Tornerà,vedrai su quel viso esile di ragazzino felice,perchè tanto amato…..
:cry: L'AMORE per il piccolo Daniele riesce a farci scrivere
Gianni Fiorenza | Tuesday January 13th, 2009Non vi preoccupate, perchè Daniele è fortissimo e riuscirà a superare anche questa, anche perchè, come sempre, sarà circondato da persone che lo amano e lo coccoleranno
Daniele, you're such an inspiring and vibrant boy! You are
Ariana | Saturday January 24th, 2009Daniele, you’re such an inspiring and vibrant boy! You are filled with beautiful positive energy. I really admire that. God bless you.
caro Daniele anni fa ci siamo conosciuti , in un
maria rosaria savio | Saturday January 24th, 2009caro Daniele anni fa ci siamo conosciuti , in un periodo buio della mia vita .ma incontrarti tutti i giorni al centro mi dava la forza di affrontare i miei problemi con maggiore coraggio.I tuoi occhi non li ho mai dimenticati, il tuo sguardo e’ rimasto ancorato nel mio cuore. Ho saputo che in questi giorni stai affrontando una nuova sfida con la vita, piccolo angelo vedrai che anche questa volta l’amore di chi ti sta intorno ti aiutera’ a combattere.Preghero’ per TE . MARIAROSARIA
Cucciolo mio,che il tuo angelo custode ti protegga...domani e sempre,la
Merlino Adriana | Sunday January 25th, 2009Cucciolo mio,che il tuo angelo custode ti protegga…domani e sempre,la tua mamma!
L'intervento a Daniele è riuscito bene,e già ride al telefono...ringraziamo
Merlino Adriana | Monday January 26th, 2009L’intervento a Daniele è riuscito bene,e già ride al telefono…ringraziamo il Signore e tt quelli che ci sono stati vicino…Adriana!
Il nostro piccolo finalmente si è operato e sta bene!!!
Sara Fiorenza | Monday January 26th, 2009Il nostro piccolo finalmente si è operato e sta bene!!! Io ero molto preoccupata.. avevo paura che soffrisse e mi dispiaceva non poter essere lì con lui.. ma la sua vocina per telefono mi ha dato forza e gioia.. sembra strano.. ed invece è stato proprio lui a cui io volevo dare forza a darla a me! Il nostro amore.. il nostro tesoro.. dopo 10 giorni a sentirlo solo a telefono, domani finalmente potrò rivederlo, perchè domani io e mia madre saremo lì con degli amici! Non temete darò un bacio anche da parte vostra!
Ringrazio tutti per il supporto che ci avete dato.. e che sempre ci date!!
Ciao Daniele, sono la mamma di Manuela,amica di Sara da
Rosaria Mancuso | Sunday April 26th, 2009Ciao Daniele, sono la mamma di Manuela,amica di Sara da sempre. Già ti conoscevo attraverso tua sorella, ma ora con questo sito, ti conoscerò ancora meglio. So che sei un bambino molto dolce perchè molto amato e ,se me lo permetti ,ogni tanto ti scriverò qualche pensierino. X ora ti abbraccio forte. Rosaria.
Hi Daniele. I am very glad to see that
Serj | Wednesday February 10th, 2010Hi Daniele. I am very glad to see that you are strong men and that you are happy. You are have very good parents. Love them . I wish you to be cheerful always !
Hi Daniele, I am a young man (like yourself!) from
Tom | Friday April 2nd, 2010Hi Daniele, I am a young man (like yourself!) from the UK, and I have a brother who like you faces many challenges which in his case are related to deafness and autism. He shares an inability to communicate but like you remains a great influence on others around him.
It gives me immense pleasure to see that your family wishes to share this fantastic influence that you are having on their lives and by maintaining this public website. It goes against the trend of public opinion being that people in your and my brothers situations are somehow a ‘drain on society’. My family and yours clearly know that this is not the case, and feel truly privileged that you and my brother are parts of our everyday lives, regardless of the difficulties we have to face that others perhaps may not. I certainly would not be the man I am today without my brother.
Keep on smiling Daniele, and i’m sure everyone else will smile with you! All my regards to you and your family, you are all truly an inspiration.
Tom
Daniel, you're playing life on hard mode and winning.
Benjamin | Friday April 16th, 2010Daniel, you’re playing life on hard mode and winning. I salute you!